All of our TinySuperheroes are small and mighty, and Super Mikey is no different. Super Mikey revealed his personality right off the bat. In fact, his mom and dad were prepared to welcome a daughter into the world when he was born! They had a name picked out and surely lots of pink clothes, so imagine their surprise when Michael appeared! Mikey has kept them on their toes ever since.
Super Mikey was born in the summer of 2012 and was a beautiful, happy, squeezable bundle of joy. Everyone loved him, which isn’t hard to believe, but he especially had his mom and dad wrapped around his finger!
They were shocked, terrified, and overwhelmed when at his 4-month check up in October 2012, they learned that their little Mikey had craniosynostosis. Craniosynostosis is a birth defect that causes sutures on a baby’s head to close earlier than normal. A suture is a type of fibrous joint found in the skull. The skull typically takes time to fuse together, giving the brain time to grow. For kids with craniosynostosis, this fusion happens prematurely, when these sutures turn into bone too soon. Not treating this defect early can cause seizures, developmental delays and/or blindness later in life. On the day of his diagnosis, Mikey became Superman to his parents, and together the three of them embarked on a journey that would reveal just how strong their TinySuperhero really was.
Timing is very important for this major surgery, so Mikey would have to wait several months until his surgery. During that timehe received surgery for ear tubes, got pneumonia, and wore an eye patch to strengthen one of his eyes. Just two months ago on May 22, Super Mikey went into surgery which was expected to last 4-5 hours.
This is the synopsis of the surgery from his mom, “Basically, though, Dr. Matthews will cut Michael’s head from ear to ear and remove several parts of his skull and reconstruct them correctly. He will create a hole on the right side of the head about 3/4 of an inch which we hope the brain will move into during the next few months — we need that to happen for surgery success and to reduce the chances for a repeat surgery.” Super Mikey was geared up TinySuperhero style at the hospital before surgery, so no doubt these doctors knew they were dealing with someone special!
And here are Super Mikey’s post surgery thoughts, “Really, almost a week ago I am rolling around the hospital with a superman cape on with cute nurses cooing over me and the next thing I know I’m wearing a turban and have tons of cords hanging out of me, and I can’t open my eyes nor sleep on my belly and I literally can’t eat — these big people are full of lies! What’s next? Santa isn’t real? And they think giving me some balloons and a bear is going to make things all better?”
Well, he does have a pretty rad scar that he left the hospital with – one sign of a true TinySuperhero. Super Mikey’s family has an amazing ability to keep faith and humor throughout their journey, something that surely translates to Mikey’s surgical success.
Super Mikey did great during surgery, but the recovery process was far from easy. In recovery, Super Mikey couldn’t sleep on his right side for up to 6 weeks, and once all of the swelling was gone he received a band to wear around his head for 23 hours a day, for 3-4 months. (They plan to decorate his band to match a Panther’s helmet – we think it will look great with his TinySuperhero cape and hope to see photos!)
Here you’ll see a strong Super Mikey before surgery and a stronger Super Mikey just 10 days after surgery!
Today, Super Mikey is doing great. He’s been wearing his band for over a month now and is successfully sleeping in his crib again. Most importantly, his sweet, sweet smile is back!
“For me, unlike anything I’ve ever experienced, this has changed me as a person and I think it’s going to take me sometimeto figure it all out. As I said, I am fortunate Mikey will not remember anything and may only ask in a few years why he hates superheroes — what a story that will be!” – Super Mikey’s Mom
Super Mikey has been surrounded by love and excitement from the day his parents found out they were pregnant. In fact, it was several of his parents college friends (AKA his Syracuse Aunties) that wrote to us here at TinySuperheroes to tell us all about how extraordinary Mikey was! We’re sure glad they did because the TinySuperhero Squad wouldn’t be the same without him!