Friday, November 22, 2013

One Out Of 2,000?

She did not see it coming. Or her Hubby. Craniosynostosis. Like déjà vu all over again. This was definitely unexpected. An irony which hurt, in more ways than one. They had already experienced it with their fourth child, Alayna. How could this be occurring again? How? One out of 2,000 babies are affected. One out of 2,000. So research says. My dear Blogging Friend, Serene, recently welcomed into this world a handsome baby boy--her sixth--and, yes, Jackson was born with craniosynostosis. There are--thus according to Jorge Posada's Website {The former Yankee's baseball player had a son born with my birth defect. Yes, I know I'm a Red Sox fanatic!!} --five different types of craniosynostosis. Jackson has the same as Alayna. Sagittal craniosynostosis. Life can feel so very coincidental.... And cruel sometimes. Dear Blogging Friends. I have expressed on here my feelings concerning craniosynostosis. How I would never recommend this birth defect. How I literally experience heart-pounding panic whenever hearing that a baby was born like me.... With a deformed head. How I blame my learning disabilities on craniosynostosis. Because, shouldn't I? I left twain comments on Serene's Blog, as she broke Jackson's birth story up in two parts. The first half left everybody waiting, impatiently, for Jackson's craniosynostosis diagnosis. Hey!! That rhymes!! This is what I wrote. First things first. I feel that when parents are potentially facing a serious not to mention expensive birth defect--especially mine--one should wholeheartedly express "congratulations". So. Congratulations!! Jackson is beautiful, Friend. I want to protest that, no, his head looks fine, and he doesn't have craniosynostosis, but I'm not a doctor. All I can do is pray. For you. For Jackson. And I can hope that the doctor's prediction was wrong. But, if Jackson does, in fact have craniosynostosis, then please know that I will support you with prayer, plus comments. And he is Beautifully Unique!! --Raelyn. And this. What an emotionally-stirring post, Friend. I have another Kindred Spirit "Cranio" Buddy. Hello, Jackson!! He is--like Alayna--Beautifully Unique. Fearfully and wonderfully made. I love the picture of Alayna holding Jackson!! They shall have a precious, intricate, lifelong sibling connection, your two "Cranio" babies. Like "twins". I can feel it!! Yes, you have already experienced this neurological birth defect. But nobody, nobody, nobody would ever want to do it again. Knowing what to expect truly does make matters worse. And, really? How can you even know what to expect? There are still countless uncertainties which lurk regarding Jackson's future. And handing your baby over to some neurosurgeon? It never becomes easy. I get it, Friend. More than I probably should. I can sense your feelings/emotions. Craniosynostosis--plus needing twain separate skull operations--really impacted my Mom. Example? She checked my new baby niece for a soft spot!! Welcome to the world, little Kindred Spirit "Cranio" Buddy!! Welcome to the world. --Raelyn
 
Dear Blogging Friends. Jackson is going to require at least one skull operation. Perhaps before he turns four months. Can you keep them in your prayers? Please? What a way to "ring in" the holidays....   
 

6 comments:

Molly The Wally said...

Oh no and of course we will pray for dear Jackson and his family. Poor baby and they must need to find strength. We pray God gives it to them. Have a fabulous Friday.
Best wishes Molly

Raelyn said...

Molly....
Thank-you for the comment, Friend!!
"Of course we will pray for dear Jackson and his family. Poor baby and they must need to find strength. We pray God gives it to them.". They will appreciate it!! ;op

Serene is my name, not my life! said...

Thank you friend! That was a really sweet post.

Raelyn said...

Serene....
Thank-you for the comment, Friend!!
Your welcome!! It was my pleasure!! ;op

Dip-Dip and the Bridge said...

Sending prayers to little Jackson, hope he will be okay and have a wonderful life.
Lynne x

Raelyn said...

Lynne....
Thank-you for the comment, Friend!!
"Sending prayers to little Jackson, hope he will be okay and have a wonderful life.". I second that!! ;op