Blogging Friends.... Remember when I wrote that I had experienced a
minor mood swing-infused pity party and I'll write about it later, because I'm
still processing everything? Well. It is later!! And I am definitely finished
processing complex thoughts/feelings/emotions now.... This is me being real. Love
you later.
Look for my October fictional
children's book on Minuscule is good! as it strangely
has yet to have any comments or pageview counts!!
Gasoline. Exhaust. Oil. I grew up as a girl frequently inhaling all of these smells and then some because my Dad was an amateur mechanic. As odd as this may sound? Today, I love these
"car smells"!! See. My Dad would purchase various rusty old cars. Pop
open their hoods. Take tools to engines and such. And then he would fix these rusty old cars' mechanical issues!! I recall my Dad
pulling out entire engines and setting them on our backyard patio. Then? He would put them back in completely repaired!! And I have some fond childhood memories of my Dad's
cars!! Many, I'm afraid, I do not recall!! But there was a baby blue Ford
pickup truck. If memory serves me? My Dad
used to take me for drives in that old baby blue-painted Ford pickup truck!! Just him
and I!! There was a green Datsun 510 wagon with an orange door. If memory serves me? That Datsun 510 wagon broke down on my Mom in a
Safeway parking lot once!! Whoops. Then, like an apologetic knight in
shining armor, my Dad rescued us, alongside a tow truck driver!! He later repaired
its issues at home!! My Dad was also a mechanic by necessity. See.
Our family vehicle was an old yellow
and white Chevrolet suburban. Talk about years
of memories we have with that car!! Its breaks went out on our way home from a
park. That was an incredibly terrifying experience!! Yikes!! Our nerves were
the only things that became wrecked, as Mom somehow managed to safely park it a
few short blocks from home and we all walked back!! No injuries or collisions!!
Thanks be to God!! Speaking of injuries. I slammed my right hand thumb
in this Chevy suburban's middle seat door. Ouch!!
Because I'm insane or stupid or both, I yanked my thumb
out of that door, which was not closed
tight. Blood freely gushed
through its nail. So I sucked on my
thumb like a sleepy toddler!! Yum? I actually like the taste of my own
blood!! I never fractured the
thumb, though!! However. My thumb nail did
turn various hues of blue, purple and yellow before about 1/3
of it fell off. Which greatly fascinated
me, because I am an oddball!! I also fell
out of this old Chevy suburban while on roller skates. Ouch!! See, its spare seat folded
down which caused a smooth surface. As resulted, I hit the back of my freakishly hard skull and sustained
a head injury, while blood freely
gushed out!! Is that why I am so crazy?! This
yellow and white Chevy suburban also broke
down on our way to camping one August day. We slept in a hotel
overnight so that my Dad could fix
its mechanical issues. Yes, old cars are
prone to breakdown. Even if they have a good mechanic who
performs routine maintenance work on them, and an incredibly reliable engine underneath
the hood. Breakdown happens. Metaphorically speaking? Throughout my journey
with folliculitis decalvans, I am an old car. Can
I be a baby blue-painted Ford pickup truck?! Wait. Then I am not a car
after all.... But this old truck can carry around "loads" such as her
nieces, "Amethyst" and "Opal"!! I'm alright with that!! So metaphorically speaking, I am an old truck!! I'm "rusty"
in some areas--I do have occasionally visible bald
spots--but "underneath the hood"? My "engine"--sanity,
mind, heart and soul--have been running strong!! For the most part. With seemingly a lot of routine maintenance work done--sorting through negative thoughts/feelings/emotions regarding having folliculitis decalvans--there were no "breakdowns"!! Not yet. But rusty
old trucks are still prone to "breakdown". Right? And precisely
one month ago yesterday, on September 12th, 2014? This rusty old baby
blue-painted Ford pickup truck--me!!--"broke down". Hello,
minor mood swing-infused pity party!! On September 12th, 2014? I was scheduled
for a follow-up appointment with my dermatologist, Dr. E. Which had been changed twice!! Ugh. For
reasons beyond my comprehension? I was nervous during our
appointment. Despite the fact that Dr. E. feels more like an amazing friend
than a dermatologist!! Was it perhaps because I had been awake since
5AM? Yes, I felt tired. Yet, I had been running on adrenaline
during this entire appointment!! Was it perhaps because I'd already felt
uncharacteristically tearful for twain days? I do not know.
But I was nervous. Dr. E. and I talked while I showed off Baldy's next
door neighbor. I asked her some prepared questions about
folliculitis decalvans, as I had Google-searched it. She answered them
to the best of her knowledge, since there truly is very little
information available on this rare disease. Dr. Erin examined my
scalp, then administered several steroid injections. Which do not
even hurt!! Because I possess a freakishly hard head.... Remember?! I expressed
my thoughts/feelings/emotions about swallowing ineffective medication
to Dr. E., as "Plan C" {Our third prescribed antibiotic that I cannot
remember the name of!!} was obviously ineffective. "It wreaks
havoc on my emotions," I told her, "To take something
that's supposed to be working.... But still lose my
hair." I drove this point home. Yes, I repeated myself, because I'm obsessive
compulsive like that!! But
ultimately? Dr. E. gave me several sample bottles of "Plan B",
which, we had barely tried before quitting it's prescription for
non-side effects reasons!! Well. Technically, since Plan B is a contraception, I should not call it that!!
So how about this? It is "Experiment B"!! Dr. Erin also gave me several sample bottles of a topical
steroid spray.... Because my form of folliculitis decalvans is now
considered "severe". Wait. What?! This was not how I planned my appointment with Dr. E. would go!! Uh-uh. I was planning
to let it go!! Is the song from "Frozen" in your heads yet?!
Good!! I was planning to finally accept folliculitis
decalvans' fate and lose my beautiful, straight, brunette hair.
That's right. I was planning on saying goodbye to Dr. E. .... Forever.
Yes, I was planning for this to be my last follow-up appointment
with Dr. E. Which may have been why
I felt so freakin' nervous that day!! Hmmm.... I was even planning
to voluntarily go hat shopping!! Yes, I was planning.... Perhaps
I should have been more assertive with Dr. E., as I'm now beginning
to feel like a human medical experiment. I mean, come on. This drug
is proving itself ineffective? Alright. Try this one, instead. I even wrote a fictional children's book in August
expressing how I was planning this
appointment with Dr. Erin. Guess what? My character, Victorya, was not
nervous. Quite the contrary!!
Victorya was definitely assertive!!
And she even donated her hair to Locks of Love!! Remember?! Writing
this story was both emotionally difficult and therapeutic for me at once!! I
even wrote Dr. E. a goodbye letter. Which I was never planning on giving her!!
Doing so simply proved itself touching,
emotional and therapeutic. As my nurse {Not Dr. E.'s usual "sidekick".
I'm afraid I do not recall this nurse's name!!} looked through my thick
medical file, and discussed "Experiment B"? I could sense that
something was "mechanically" wrong "under the hood".
And sure enough. This rusty old baby blue-painted Ford pickup truck--me!!--"broke
down". Enter my first--and most likely not the last!!--folliculitis
decalvans-related minor mood swing-infused pity party!! I wept
uncontrollably all day. Afternoon. Evening. And night. I could not
even hold back my tears in a darkened, deserted movie theater while watching
"Dolphin Tale 2"!! Which, I felt terrible about!! This rusty old
baby blue-painted Ford pickup truck--me!!--was seemingly not
showing any signs none whatsoever of starting its "engine"--sanity, mind, heart and soul--again.
As per usual? I did not expect this "breakdown". No, I
never saw it coming. Because my "engine" had truly been running
strong throughout this entire folliculitis decalvans journey {With humor,
gratitude and perspective gained along the way!!} I have never
even allowed myself to cry over having folliculitis decalvans or
hair loss issues. However. I do invite negative
thoughts/feelings/emotions in. Because they are perfectly "normal" and always
fleeting. I have been putting on a continual "brave act". This
rusty old baby blue-painted Ford pickup truck--me!!--was bound to "break
down" at some point!! I then journeyed through a period of confusion.
I was bombarded with queries. What on earth has God been teaching me
all this time?! I thought.... That He had been teaching me lessons against
vanity. I thought.... That He had been teaching me the truth in--to quote our
dear, dear, dear friend and breast cancer survivor--"Hair is highly
overrated". I thought.... That He had been finally teaching me a profound sense
of gratitude for my twain Frankenstein-like surgically-created craniosynostosis scars. I thought....
that He had been teaching me self-acceptance. I thought.... That He had been
teaching me how bald is beautiful and physical differences are indeed alright.
I thought.... That He had been teaching me the strong, unmistakable, impossible-to-ignore
message of letting go. What on earth has God been teaching me all this time?! Honestly? I did not have any answers during my
"breakdown". Is God teaching
me.... To trust His Plans--whether or not I lose my beautiful hair while
swallowing "Experiment B"--throughout this entire folliculitis decalvans journey? Is God
teaching me.... Gratitude for how Dr. E. has so very graciously leapt through
hoops to help save my hair from the progression of folliculitis decalvans? I suppose I should
have been thrilled, excited, relieved and jumping for joy after
my appointment on September 12th. But I was not. Instead, I felt so
very lost, like a hiker in unfamiliar woods sans her
compass. Do I want to lose my beautiful hair and go bald? Of course not!!
Who would?! But the difference in my thoughts/feelings/emotions now as opposed
to one year ago? I am no longer Drama Queen desperate about embarrassing hair
loss issues!! Because I don't give a damn!! But truth be told? I would never
wish folliculitis decalvans on an enemy. Ever. Perhaps my plans
did not unfold quite like I had imagined they would that
September day. But God's did!! Because, perhaps this rusty old baby blue-painted
Ford pickup truck--me!!--"broke down". But God? He is
my "Mechanic", if you will, Who took His "tools" then fixed this "engine"--sanity, mind, heart and soul--so that I can run strong once more!! Because, ever since I "broke down" last month? God has reminded me that we are all students during our Lifetimes. What on earth did I think....? That He was
finished teaching me folliculitis decalvans-related lessons?! Quite the contrary!! Because
aside from God teaching me lessons against vanity? Aside from Him whispering that
hair is highly overrated? Aside from God instilling in me a profound sense of
gratitude for my twain Frankenstein-like surgically-created craniosynostosis scars? {Because, after all. Without them, I would
be dead!!} Aside from God gradually working in me self-acceptance issues? Aside
from Him whispering that bald is beautiful? Aside from God broadening my
perspective about visible physical differences being absolutely alright? Aside
from God encouraging me to trust His Plans {Whether or not I lose my hair and
go bald despite swallowing "Experiment B"} throughout this entire folliculitis
decalvans journey? Aside from Him teaching me humble gratitude toward Dr. E.
for so very graciously leaping through hoops to save my hair? Aside from God's
strong, unmistakable, message of letting go? God is also teaching me.... That Hollywood actor Vin Diesel
can turn me on with his boyish smile and charm
alone--despite being bald-headed!!--so I do not even need
to notice guys with long, flowing hair anymore!! God is also
teaching me.... To never, ever, ever lose hope.... And that I must
place it in Him, not medications or treatment. God is also
teaching me.... That this folliculitis decalvans journey is an adventure....
Not a trial and tribulation. God continues to teach me.... So
metaphorically speaking, I am an old baby blue-painted Ford pickup
truck. And now? Whenever I see my "rusty" areas--bald
spots--in a mirror? I smile. Because they are reminders of all
the ways that my "Mechanic"--God--is working on me. They are
reminders of all the ways that He is growing, evolving, and maturing me!!
But sometimes? Rusty old baby blue-painted Ford pickup trucks "break
down".
4 comments:
You are nothing short of an inspiration to all of us. Through all your difficulties you always see the good in the end. We salute you. Have a marvellous Monday.
Best wishes Molly
Molly....
Thank-you for the comment, Friend!!
"You are nothing short of an inspiration to all of us. Through all your difficulties you always see the good in the end. We salute you." Aw, thanks, Friend!! It is ALL God!! ;op
Great post! I loved your analogy, especially about God being your mechanic. By the way, you are much more beautiful than an old truck.
Ruby....
Thank-you for the comment, Friend!!
"Great post! I loved your analogy, especially about God being your mechanic." Thanks!! ;)
"By the way, you are much more beautiful than an old truck." You're sweet, Friend!! Dad's old baby blue Ford pickup truck was--I thought!!--beautiful.... ;op
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