Beautifully Unique : March 31st

Monday, March 31, 2014

March 31st

Look for my April children's story to be posted on Minuscule is good! {Lord willing!!} on Wednesday!! I just finished writing it this afternoon!!

Today--March 31st--is C.D.H. Awareness Day. You know what? I went thirty years of my entire long life as a congenital diaphragmatic hernia survivor without having known that this day even exists. And. According to Breath of Hope's Blog, March is also C.D.H. Awareness Month!! Which, is a fact that I just learned the other day. So!! In honor of this being C.D.H. Awareness Day. Here is a virtual shout-out to "my" Beautifully Unique Kindred Spirit Blogging Buddies. Killian, Whitney, Timoteo, Wyatt, Ramsey, Ava, Catherine, Parker, Clara, Jude, Clay, Memphis, Sunni, Bonnie, Atiksh, Camden, Oliver, and Jim Beau. Here is an analogy {Which I "sent" via comment to a dear C.D.H. Mama!!} that my crazy never-shuts-down head wrote.

C.D.H. is, I think, much like a raging forest fire. Children born with it are fragile yet strong trees. Sometimes. The raging forest fire of C.D.H. can burn its trees, scalding them badly. These such C.D.H. children then live most of their lives with unwanted health issues. Sometimes. The raging forest fire of C.D.H. can merely singe its trees. Such as in my case. Then the only sign that there ever was a raging forest fire at all is very visible yet beautiful scars. And tragically. Sometimes. The raging forest fire of C.D.H. can burn its trees to ash. As C.D.H. children are still dying. But I have personally witnessed something miraculous firsthand. Even trees that have been badly burned grow back afresh!! Never lose hope.

Happy C.D.H. Awareness Day.

12 comments:

Unknown said...: Miracles happen and your gift from God is your eyes are open to see them. Have a terrific Tuesday.
Best wishes Molly; April 1, 2014 at 12:45 AM
Mary Lou said...: Molly....
Thank-you for the comment, Friend!! ;op; April 1, 2014 at 6:37 AM
Sketching with Dogs said...: No matter how bad things look, there is always hope especially for people who overcome problems and live life to the full.
Lynne x; April 1, 2014 at 11:30 AM
Mary Lou said...: Lynne....
Thank-you for the comment, Friend!!
"No matter how bad things look, there is always hope especially for people who overcome problems and live life to the full.". This touched my deepest most heartfelt emotions, Friend!! ;op; April 1, 2014 at 4:09 PM
M said...: you are the proof that miracles happen, just look at all you have accomplished and I know there is so much more that your soul will give this world. thank you for crossing my path. and I am excited to see your newest story. M; April 2, 2014 at 7:36 PM
Mary Lou said...: M....
Thanks for the comment, Friend!!
"You are the proof that miracles happen, just look at all you have accomplished and I know there is so much more that your soul will give this world. thank you for crossing my path.". You're so sweet, Friend!! ;)
"I am excited to see your newest story.". Thanks!! ;op; April 2, 2014 at 9:26 PM
bbes tribe said...: Raelyn, so glad you visited our not so often blog. You are awesome and have a beautiful spirit. :-)
Barb and the furkids; April 3, 2014 at 6:03 AM
Mary Lou said...: Barb and the furkids....
Thank-you for the comment, Friends!!
Your welcome!! I am feeling a bit behind in Blogville at the moment as I have been busy, but I will catch up. Someday.... ;)
"You are awesome and have a beautiful spirit.". You're sweet, Friends!! ;op; April 3, 2014 at 6:44 AM
Unknown said...: Thank you for spreading CDH awareness!! I'm grateful for all you do for us!; April 4, 2014 at 9:43 PM
Mary Lou said...: Ali....
Thank-you for the comment, Friend!! I truly appreciated it!!
"Thank you for spreading CDH awareness!! I'm grateful for all you do for us!". You're welcome, Friend!! It seems so small, but Minuscule is good!! ;op; April 4, 2014 at 9:50 PM
Ruby said...: Wow! i had know idea! Thanks for letting us know.; April 7, 2014 at 10:54 PM
Mary Lou said...: Ruby!!
I found your missing comment!! You wrote on this post and not the one about Robert Downey Jr.'s birthday. I. Am. An. Idiot!! ;-}; April 16, 2014 at 6:29 PM

"It's A... Terrible Privilege"

{Taken from "The Avengers"}
Tony Stark: You know, I've got a cluster of shrapnel, trying every second to crawl its way into my heart.
[Stark points at the mini-arc reactor in his chest]
Tony Stark: This stops it. This little circle of light. It's part of me now, not just armor. It's a... terrible privilege.
Bruce Banner: But you can control it.
Tony Stark: Because I learned how.
Bruce Banner: It's different.
[Banner tries to read the computer screen, but Stark slides the data aside with his finger so the two can see face-to-face]
Tony Stark: Hey, I've read all about your accident. That much gamma exposure should have killed you.
Bruce Banner: So you're saying that the Hulk... the other guy... saved my life? That's nice. It's a nice sentiment. Save it for... what?
Tony Stark: I guess we'll find out.
[Banner and Stark get back to work at their respective computers]
Bruce Banner: You might not enjoy that.
Tony Stark: You just might.

Raelyn:

I am a 31-year old American woman. I was born with multiple birth defects. Craniosynostosis. {I did not have any soft spots.} Congenital diaphragmatic hernia. {I had a hole in my diaphragm.} And Wolff-Parkinson-White syndrome. {I had an irregular, rapid heartbeat.} All three birth defects have been surgically repaired!! I live with "developmental delays". Learning disabilities, if you will. Such as--unfortunately--premature short-term memory loss. Oh, and I have attention deficit disorder, as well!! I do not like to evade such an issue as my learning disabilities. No. It hurts sometimes to be different. I was also diagnosed with a condition called folliculitis decalvans. {I am more than likely going to lose my hair, go bald, and unveil twain Frankenstein-like surgically-created craniosynostosis scars. Permanently.} But God is gradually teaching me that we are all, as my phrase goes, Beautifully Unique!!